National Reference Center for Rare Diseases and Congenital Anomalies in Uruguay

May 2022 – December 2024

    • Health Technology Assessment and Health Economics Projects, Center for Implementation and Innovation in Health Policies Projects
    • Concluded

Period: May 2022 – December 2024

Summary: This project proposes support and technical advice at all stages of the development and implementation of a strategic care plan for people with congenital anomalies and rare diseases.

The project will be carried out in four phases: 1) Diagnosis of the baseline situation and challenges and opportunities for the implementation of lines of action; 2) Design and development of the implementation plan for a network of services and improvement proposals; 3) Support for the implementation plan of the service network; 4) Post-implementation evaluation, monitoring and audit.

Funder: Social Security Bank (BPS) of Uruguay.